Hi my name is Daymon, and I was diagnosed with Burkitt's Leukemia. It happened so fast, it all started when I was having back pains. My mom was really worried when they were getting really bad so she took me to the emergency room in Richfield. The doctor there said that my back looked fine, but there was something in my blood called platelets and that they were very low. So that was why they were worried about me. I had to have 2 more blood tests, they did not look very good so my doctor decided that I should go see a Dr. Barnett who is an oncologist at Primary Children's Hospital. I was really scared and I was in allot of pain. They decided to do a bone marrow biopsy and it is what confirmed that I had the Burkitt's Leukemia. It's hard to understand why I have to be in here, but my mom and dad said it's the best hospital to be in. They told me my body is just really sick right now and it needs special treatments called chemo to make it better. I know that there are a lot of people praying for me that love me very much, and I know I will get better but it will be a while before that happens. So this will by my own journey.

Friday, April 15, 2011

mario party






Lets just say there is no way to put in words how wonderful Daymons birthday was! He had so much fun, there are so many emotions that came with the day. We were so happy for him to feel so good and be able to celebrate his 7th birthday. Its such a blessing that he is here and he is beating this disease! We just know that he will have many many more birthdays! His party was a Mario party, we had a stand up Mario and that was his favrite thing there. He could not have a friend birthday party so we just invited family and a couple close friends to share his day with us. Thanks everyone for making it so special for him!

Tuesday, April 12, 2011

Its hard to believe that we are on Daymons 7th round of chemo. He is a little anxious about it, but gets a little excited about the fact that after this next week he only has 2 more then he will be in remission!! He is doing so great!! I told Matt you would think they were giving him water! Ha ha, he has beaten about everybody here at Mario cart, and a few nurses have even gotten sprayed with silly string. Its so nice to have him happy and acting like the Daymon we know and love.  His counts are coming down fast but that is what always happens, so we know that he will soon not feel the best but what a blessing it is to have more good days than bad! We go home tomorrow on the 13th and he will turn 7 on Fri the 15th, so also blessed he will be home for his birthday!
 

Sunday, March 20, 2011

We have been home now for 3 days. Daymon did well through his last treatment. Right now the fun is starting, he is getting mouth sores, tummy pains, back pains and the list goes on. He is so brave! so tired of watching him go through this, but at the same time feeling so blessed that we live in a time where he can get the help he needs. He will need his transfusions by the end of the week but another blessing (and there are to many to even count) is that he gets to have a couple extra days home this round so when his counts come up it will be nice to have a solid week of feeling better. I'm hoping to post pics soon. Again we are so thankful for all the support and love from everyone! It helps to live in such a wonderful community that we do!

Sunday, March 6, 2011

We have been home a week now, and its amazing how long the weeks feel when we are waiting for his blood counts to come up.  Daymon is doing OK. He has had Platelets and a red blood transfusion but he has been fevering.  Matt was in the Emergency room with him for 4 hours last night, his temp was 104 but since he is on an antibiotic they felt with all the sickness going around he would be safer at home. So if you know Daymon that was the best news ever!  It gets scary sometimes having him home, so much meds and always wondering if he is OK. He has his cute seance of humour, the other night he was laying by me and I kissed his head and told him "Daymon I'm going to miss this little bald head when your hair grows back" and he said "ya me to, its nice not having to wash my hair." ha ha he always has silly little things to say. Well we are hoping in the next few days he feels better and his counts start coming up before we are due back for his next round on the 14th. That sometimes is the hardest part, knowing he only has a couple good days then we start back over again.

Thursday, February 24, 2011

Daymon was on the news tonight. He was so brave and even talked!!! Him and Matt did so good, I am so proud of Daymon for being brave enough to leave the comfort of his hospital room and go down to be interviewed.

Wednesday, February 23, 2011

Day 3 of 5th round and so far Daymon is doing OK.  He has been having very high fevers of about 105 so kinda scary but that is just another wonderful side effect of the chemo.  Talked to our oncologist today and he said that the chemo is working great, so that is a good thing. We thank our Heavenly Father every night in our prayers for the blessing of living in a day that we have the medicines to cure our sweet boy. We are scheduled to go home Saturday, but as always if he fevers we are back in the hospital.

Monday, February 21, 2011

5th round

So hard to send Daymon off today for his 5th round of Chemo, He is so brave but still only a little 6 year old boy who cried as I held him just wanting to stay home. We just told him that we are at the top of that hill and after this week we get to start coming down, he has 9 rounds total so only 4 left after this week. He gained a little weight back and he is looking more healthy.  It was so nice to have him home for a full week, but sending him back was so hard, its something that we will never get use to.  We are so blessed and we know that our Heavenly Father is watching out for our sweet boy every day.

Saturday, February 12, 2011

Well after 7 days in the hospital with a high fever of 104 and many many test Daymon can finally come home! He has had a really hard week. They were worried about him having the same infection he had in Dec so he had to go a couple days without eating or drinking anything, so to tell a 6 year old that was very hard. There were times he would just cry for hours begging me to let him have a drink or eat anything, and to have to tell him no was very emotional for us. He had to have a couple blood transfusions and platelets but we are just glad to have him coming home for a week before his next round of chemo. He was suppose to go in on the  16th but they are moving it back a week so he can have some time at home. We as always are so grateful to everyone for all the many many prayers on his behalf!

Wednesday, February 2, 2011

Daymon is doing really well at home right now.  He still needs nausea med, but compared to his last  rounds this is going very well.  We are do back to Primary Childresn on Feb 16th so he is excited he will be home for Valentines and that his ANC count will be fine by then for him to take stuff around with us.  We know he still might get a fever and end up in the Richfield Hospitol for a couple days but he says that it is better than 5 days ha ha, I wish I could be as positive as he is most days.

Sunday, January 30, 2011

Today our nurse came in and said that they were decorating the ICS for Valentines and asked if Daymon wanted to make a few things to hang in the hall.  He was excited and with my help he made the 3 you see in the picture. He got to drag his IV pole with him and tape them up, you wouldnt know it from his face but he was excited to do it.  He is doing very well this round. The Chemo is working and his Bone Marrow came back clean so that is a very good sign. If he does not fever he can in hope come home tomorrow night.

Thursday, January 27, 2011

Chemo is going good, he has to take eye drops every 3 hours because one of the side effects is it can hurt his eye cornea but he is doing OK with that.  He fevered today so they took a blood culture to see if he has an infection that they need to treat. We wont know what his biopsy shows until tomorrow and his cat scan showed a infection in his spleen so that is why his side has been hurting. They told us it is something that can be treated with meds so its just another small thing to get over. We are hopeful he can come home Monday if all goes well. He is also eating everything in sight! It is so good to see him have an appetite, he isnt nauseous yet and we hope it wont be that bad this round.

Wednesday, January 26, 2011



Daymon woke up this morning and said "after this round only 5 more mom"! Oh if we all could only be as strong and positive as he is. He had to be up there at 9:30 a.m. and his bone marrow biopsy is at 11:30 then he has a cat scan at 1:00 so he has a buisy day and they will start his chemo tonight. Dr. Barnnet our Oncologist said that he has hope everything will go smooth this round. Yesterday he had such a good day, he felt better than he has in a long time and was smiling and playing with friends and his sisters. I was lucky to get a few pics to post. It helps remind us that he will be our happy and fun loving boy when this is all over. Will post more later to let all know how his day went.

Tuesday, January 18, 2011



This is a few more pics from christmas day in the hospitol.  They allowed  Kayla and Raylee to come see him. He could not smile from all the sores in his mouth but he would tell us that he was happy. It had been 30 days since we had been together as a family. Its one of those moments we will never forget.
Well after 4 days in the hopitol with his fever we got home finally last night at 7.  His counts should come up in the next couple days, so that will be nice for him to feel better before his next round. He is scheduled for the 26th to go back up. He will have another Bone Marrow Biopsy and a cat scan then that night will start his 6 days of chemo. Its so hard when he finally feels better for only a couple days to go and start back over. But at the same time we just want to get this over with!

Saturday, January 15, 2011

Well what we were hoping wouldnt happen did, Daymon started to fever fri morning. We had to take him to the ER in Richfield and thank goodness Dr. Brown was fine to treat him there instead of having to go back up north. They drew blood and started him on a antibiotic and will know more on sunday about what they need to treat it.  So he stayed last night and we are hoping he gets to come home mon. but a hospitol is a hopitol to daymon, so it really did not matter where we were he still hates it. He needs a transfusion so they will send that from up north and he will get it tomorrow. The poor thing is just so sick, we are just patiently waiting for his counts to come up so  that he can feel good for a couple of days before we have to go back to primary childrens on the 24th. Thats one of the hard things about it, is he finally starts to feel good and we go and start all over again.

Wednesday, January 12, 2011

We cant believe he is home again!! His 2nd round went so much better. He is still soooo sick and has sores in his mouth down into his stomach, but they sent us home with good meds to make him ok. Its a little scary being home where he can get so many things. We are not having any visitors right now but we know everyone understands. If he gets even a fever we have to drive back up, so untill his counts come up we are a little protective. The home health comes on mon and thurs to draw his blood, and if he needs a transfusion they can just send it to our hospitol and we can just go there.  He is skin and bones! He has really no muscles, so we have to cary him whenever he wants to get around.  He has to be hooked up to feeds most of the time so that he can get a little weight back on. We are scheduled for his 3rd round on the 24th so he has a good little chunk of time to be home, unless he gets sick.

Saturday, January 8, 2011

ugh!

Poor Daymon is so sick, the chemo is being hard on him right now.  He was up most of the night throwing up and having bad leg pains. Right now they are deciding what to give him for pain, we just hope that it does not last long. He had a spinal tap yesterday and his next one is not scheduled till monday.  Just hope he feels better tonight but probably wont. We just are still hopful that the mouth sores are not as bad this round and he can come home soon. The next couple of days will decide. It breaks my heart when he moans and cries but he is also so strong and brave I am so proud of him.

Thursday, January 6, 2011

Yesterday went good, He had to be there at 11:00am to get a check up with our Oncologist to make sure he was ok for his next round of chemo, his hands are steal pealing bad and he is so tiny and week but his blood counts were up so they said that it was a go.  He had his 2nd Bone Marrow Biopsy and spinal tap yesterday at 12:30 and his chemo was started last night.  When he gets chemo he has to be up every 2 hours for 72 hrs to pee so it is long nights.  The side effects will not come till later so we are just praying very hard that his body handles it well this time. They lowered his Methotrexate from 8000mg to 6000, so they are hoping that will help with some of the side effects.He has 2 more spinal taps this round, that is where they put chemo right in his spinal fluid. Those are long days cause he cant eat or drink till after. Everyone is so wonderful to always ask what they can do. All we ask is to keep praying for Daymon. We love you all so much for the support and love through all this.

Tuesday, January 4, 2011


The kids in Mrs. Brienholts 1st grade class made Daymon a welcome home sign. He misses school so much it was nice to come home to see that. They have made him cards and a poster for his hospitol room, and some kids have sent gifts so he knows he is missed. He even got to have his good friends Cold and Tyson come play, along with other cousins and friends.  We have mixed emotions right now knowing we have to go back tomorrow but we have faith that all will be ok. We are just hoping he is there for only a couple weeks instead of a month this time.

Sunday, January 2, 2011

HOME!!


It is soooo nice to be home! When we were leaving the hospitol Daymon said "man its good to be out of there!" lol, even though it is only for a couple days. Being home has been nice but a whole new journey. Home health came and showed us how to set up his feeds, and we have a schedule of when to give him his meds and flush his central line. So even though we are home there is A LOT to have to remember but its like they say "theres no place like home."  Daymon is doing really well being here. He slept for the first time in 33 days in his own bed, he loved how nurses did not have to come in every hour to check his vitals ha ha.  His ANC counts are up so he is allowed to have visitors.  Its nice to see him play with Raylee and Kayla. He even had his best friend Colt come and play with him for a little bit. He has enjoyed seeing his grandparents, aunts, uncles and cousins. He could not wait to play Bingo at his grandpa and grandma Butlers house with everyone, he asked every 5 min today when it was time to go. He even got to play the wii with his cousins Preslee and tracen along with uncle Kacey, so its nice to see him get some strength back by being home.  Even though we have to be back on Wed the 5th he understands and is ok with it, so we are trying to just enjoy it and not worry about whats to come. Thanks again for the many prayers, I always say that there can never be to many people praying for him at this time. We love and appriciate all of you!!

Saturday, January 1, 2011

Christmas




All I can say is I hope we never again have to spend christmas in a hospitol again! It was no fun, it was very hard on Daymon and our whole family.  We watched chritmas movies and tried to get in the spirit of the season but it really was not the same to have our family sepearated. Aunt Becky gave Daymon a tree for his room, and he made a Gingerbread house while we were there, but he was still very sad and we are just glad the month is over. The only smile we saw for over 3 weeks was when he opened a present from his uncle Kacey, it was a Dragon that he has been wanting.  Matt and I both shed many tears this last month but we shed alot more seeing our little boy have a small smile on his face.

Oh Hair

Poor Daymons hair was starting to come out in clumps, I woke up on dec 21 my birthday and saw hair all over his pillow. I could not help but cry, our sweet boy was going through so much and that didnt help with it. His aunt kassie came and saw him a week before and cut his hair. Thank goodness she did that cause it was so long before she cut it that it would have been much worse. He is so handsome with a little bald head it does not matter.

Family


There is nothing more important than family, and we are lucky to be apart of 2 amazing ones! I also include our wonderful naigbors in that group, Amber next door who has scheduled meals to come everyother day. They have all  done so much for us this past month, they have taken care of the girls while Matt and I have been gone, they cleaned our home and been there with us through it all. I know they have prayed for us everyday and have felt our pain too. Thanks to our wonderful family for all they have done, we know that we are going to rely on them more and more through the next several months.
Oh what a month!! Lets just say that December 2010 is a month we would rather forget but has made us a stronger family.  We were told Daymons chemo is one of the most intense a child can get.  The side effects have been what has kept us at primary childrens for so long.  We arived Nov 30, and stayed till Dec 31.
The fist week of chemo was very mild, it was to prepare his body for the more intense round that started on Dec 9th, we were told that if he did well (wich most kids do) he would be home on the 16th in plenty of time for Christmas.  Well of course it all went downhill from there. One of the drugs used in his chemo is called "Methotrexate", and lets just say I call it the mean @##$!!  Sorry for my language.  But it is a bad drug.  It causes the worst side effects in the chemo, all the chemo drugs cause some side effects but that one is the worst of all. The worst side effect he had was "mucositis" which is bad sores in his mouth, throat, stomach and bum. It was so bad that his intestines quit working and they had to pump infection out everyday for a couple of weeks.  The infection was caused by a bacteria called "C. difficile".  He fevered, threw up ALL THE TIME, the skin on his fingers peeled off in big chunks and he had a severe rash on most of his body.  His sodium level got very low and there were a couple of times we were being prepared to go down to the ICU. It was very scary a lot of the time.
         We never thought it could be so hard to see our sweet little boy go through all these trials. Matt said it perfect when he called me one night and said "I now know what it is like to watch someone go through hell" because that is what it has been but Daymon is so strong and is trying the best he can to handle this well, Matt and I are so blessed to be able to stay each 2 nights and then trade off, we never thought that Matt getting a job at D&A McRae 8 months ago would turn out to be one of our lifes biggest blessings. His boss, Dallas McRae along with his wife Arin are amazing people. I never thought someone could be so caring and generous! Matt still recieves pay checks without even being at work. Finacially we could not have made it without them.  How lucky and grateful we were and are for our faith to get us through this so far. So many have fasted, prayed and opened up their hearts and given us money.  For that, we are forever grateful.  I promise now that we finally got this blog up we will try and post more often.